Rainbow Babies & Children's Hospital

Thursday, March 23, 2017

Shape of inner ear helps predict hearing loss for children with rare hearing loss disorder

CLEVELAND — It may be possible to predict the severity of hearing loss for children diagnosed with enlarged vestibular aqueduct, according to a new study published in JAMA-Otolaryngology-Head & Neck Surgery. This retrospective chart review, authored by physicians and researchers within the University Hospitals Rainbow Babies & Children’s Enlarged Vestibular Aqueduct (EVA) Research Project, is one of the first such studies to find a direct connection between the increasing width of the vestibular aqueduct and the degree of hearing loss a child experiences over time.

“There is still much to learn about the true causes and impacts of EVA,” says Mustafa Ascha, MS, first author of the study and a researcher within the UH Rainbow Department of Otolaryngology. “The hope is that these findings will help parents of young children with EVA, and their physicians, better understand what lies ahead for their child’s hearing and speech based on the severity of that child’s malformation.”


Tuesday, February 28, 2017

Ohio’s first fetal heart procedure performed at UH Rainbow Babies & Children’s Hospital

CLEVELAND – A mother and her 29-week-old unborn child are doing well after a team of physicians performed a successful in utero procedure at University Hospitals Rainbow Babies & Children’s Hospital (UH Rainbow) last week. Known as fetal aortic valvuloplasty, this is the first heart procedure done before birth in Ohio.
 
This rare approach helps prevent the progression of hypoplastic left heart syndrome (HLHS) in about half of all treated patients. Babies born with HLHS are sometimes referred to as having half a heart, because the left chambers of the heart are too small to pump blood to the body. The minimally invasive procedure may make the baby healthier and more stable at birth and may decrease the number of open-heart surgeries for the child later in life. 
 
“Right now, mom and baby are doing well, and we noted improvement in the way the blood flows through the heart prior to mom’s discharge,” says James Strainic, MD, Director, Fetal Heart Program at UH Rainbow.


Friday, February 03, 2017

University Hospitals Rainbow Babies & Children’s Hospital opens first stem cell study in patients with cystic fibrosis

CLEVELAND – A 39-year-old man with cystic fibrosis (CF) made history by becoming the first person in the world to receive human adult stem cells in a new research study that researchers hope will someday lead to the development of a therapy to reduce the inflammation and infection caused by CF. 

The pioneering subject in the study is Bob Held from Alliance, Ohio, who received an infusion of cells called allogeneic human mesenchymal stem cells (hMSC), adult stem cells collected from the bone marrow of healthy volunteers.  Mr. Held was diagnosed with CF when he was 16 months old. 

Currently, there is no cure for CF, and life expectancy for patients who survive into adulthood is approximately 41 years of age.


Saturday, December 03, 2016

UH Rainbow Babies & Children’s Hospital Experts to Present Pediatric Focused Data at 58th American Society of Hematology Annual Meeting

CLEVELAND – Researchers from the Angie Fowler Adolescent & Young Adult Cancer Institute at University Hospitals Rainbow Babies & Children’s Hospital (UH Rainbow) will present data focused on improving clinical outcomes for pediatric hematologic disorders at the 58th Annual Meeting of the American Society of Hematology (ASH). The meeting, held from December 3 to 6, 2016, in San Diego, California, gathers a global community of more than 20,000 hematologists to share education and research on the most pressing topics in hematology.
 
Ashish Gupta, MBBS, MPH, a pediatric hematology fellow at UH Rainbow, will share results from one of the largest quality controlled retrospective studies of children with acquired aplastic anemia. The data makes a compelling case for the pediatric hematology community to revisit the current treatment algorithm for this rare disease. 


Tuesday, November 15, 2016

Non-profit organization Babies Need Boxes expands to Ohio

CLEVELAND – University Hospitals (UH) MacDonald Women’s Hospital is collaborating with non-profit organization Babies Need Boxes Ohio to provide a free maternity package for expectant mothers that includes a safe sleep space for baby. The program will launch Tuesday, Nov. 15, at 11 a.m. at UH MacDonald Women’s Hospital’s CenteringPregnancy session.
 
“There are nearly 200 cases of sudden, unexplained infant deaths in Ohio each year, and research tells us two of the biggest contributors are premature birth and unsafe sleep arrangements,” says Celina Cunanan, CNM, MSN, Director of Nurse-Midwifery at UH MacDonald Women’s Hospital and founding board member of Babies Need Boxes Ohio. “Babies Need Boxes will help us fill a gap in the availability of safe sleep spaces for our pregnant moms to help keep their sleeping newborn safe.”
 
Babies Need Boxes was founded in 2015 by Danielle Selassie after she read an article about the impact baby boxes had in Finland to decrease the nation’s infant mortality rate. The Minnesota-based organization equips families with tangible resources to help ease the transition to parenthood and prevent Sudden Infant Death Syndrome (SIDS). 



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